Welcome to Smart Feet!

EHLERS-DANLOS SYNDROME (EDS)

Ehlers-Danlos Syndrome is an assorted group of inherited connective tissue disorders characterized by joint hypermobility, stretchy skin and tissue fragility.  Collagen – a protein that acts as “glue” in the body by adding strength and elasticity to connective tissue - is faulty in those with EDS.

There are 6 major types of EDS that are classified according to their manifestations.  Each type is a distinct disorder passed on genetically. Common symptoms include fragile skin that tears or bruises easily, severe scarring and loose and unstable joints, which are prone to frequent dislocations.  Pes planus feet (flat feet) are found in those with EDS.

Other names or similar foot conditions:

• Familial joint hypermobility syndrome

Symptoms:

• Fragile skin that tears or bruises easily
• Slow wound healing and severe scarring
• Loose and unstable joints prone to frequent dislocations
• Joint pain

Signs to look for:

• Diagnosis
• History of joint dislocations
• Flat feet

Possible Causes:

• Genetic

Goals:

• Align feet, ankles, knees and hips
• Optimize balance
• Provide arch support
• Control motion in feet
• Improve gait

Solutions:

Arch Supports:

• Plastazote cushion in shoe – place arch supports under it

• Bio-Orthotics Winstep or Sundance exercising support with metatarsal lift

• Lower and thinner arch support with longitudinal and metatarsal support, such as the Bio-Orthotics Journey or Silhouette, for use when shoes cannot accommodate the Winstep or Sundance exercising support

• Bracing with thin arch support and Plastazote cushion within the brace where possible

• Extra depth shoes with firm heel counters, full steel shanks and rocker soles

• Soft or stretchable uppers

• For exercise, use shoes with titanium springs

• Stop wearing wear pumps and high heels

• Go barefoot on a minimal basis only

Other: 

• Padded tongue if necessary

• Where the above shoes and arch supports do not provide enough stability, wedging and flares may be necessary

• Spot stretching with ball and ring stretcher

• Toe cushioning and straightening devices, such as toe separators, toe straighteners, toe gel caps, toe crests, etc.

Activities:

• Regular exercise program that promotes increased strength and circulation in lower extremities

• Regular stretching program for entire body

• Rotation of weight bearing (such as walking) with non-weight bearing exercising (such as walking and swimming)

This information does not constitute a diagnosis of your condition and does not take the place of a doctor’s care.  The information has been compiled from sources available to the general public and referenced below.  Copyright 2005 Carole Romig

Sources  Image:  Text:  A. Decker, S. Albert, Contemporary Pedorthics, Ehler-Danlos.org